Summary and Conclusions
Virtually all parastomal hernias diagnosed by a medical professional
About half diagnosed within a year of stoma formation
Discomfort was a frequent experience, followed by odour
Experience of sensations around the stoma (especially dragging/pulling) and a feeling of heaviness were widespread
Just over one in five parastomal hernias had led to further surgery and 20% had undergone surgery more than twice
Hernia repair was the main reason for most further surgery, with resiting of stoma and refashioning/shaping being less likely reasons
Main Findings: Patient Pathway
Who diagnosed your parastomal hernia?
Which problems do you experience regularly?
Which types of sensation have you experienced?
Just over one in five parastomal hernias had led to further surgery and 20% had undergone surgery more than twice
How long after your stoma was formed were you diagnosed by stoma type?
Base | Colostomy (177) | Ilrostomy (105) | Urostomy (33)^ | All |
|---|---|---|---|---|
Up to 1 year | 59% | 42% | 55% | 53% |
1-5 years | 27% | 31% | 24% | 27% |
5-10 years | 3% | 4% | 6% | 4% |
Over 10 years | 3% | 18%* | 9% | 9% |
Approximate average | 1 year 8 months | 3 years 4 months* | 2 years 5 months | 2 years 4 months |
^Note small sample size *Statistically significant compared to Colostomists
Has your parastomal hernia led to further surgery?
What were the reasons for your further surgery?
How often have you had surgery to repair your hernia?
