Summary and Conclusions

59% of ostomists had rarely/never sought help

Stoma Care Nurses were the main source of help, and far more likely to be used than any other source

A majority of ostomists ‘agreed’ that their parastomal hernia had made them more self-conscious

Just under half ‘agreed’ that it had made their pouch more difficult to put on

Research Studies

Main Findings: Seeking Help

How often do you seek help to manage your parastomal hernia?

help often

Stoma Care Nurses were the main source of help, and far more likely to be used than any other source

Who do you seek help from?

help from

How far do you agree or disagree with the following statements about parastomal hernias?

Base: All (322)
Agree
My parastomal hernia has made me more self-conscious
63%
My parastomal hernia has made it more difficult to put on a pouch
47%
My parastomal hernia has made no difference to the way I manage my stoma
46%
My stoma has changed shape since I was diagnosed with a parastomal hernia
38%
Having a parastomal hernia is not something I worry about
36%
Since I have had a parastomal hernia, the output from my stoma has become more erratic
30%